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A select group of children from across the nation are being recognized this week in Florida for courageously battling illness and disease at the Children's Miracle Network's national conference.

Among those children is Montana's own Sam Faulkner of Ulm, who is Montana's "champion child" for the Florida conference.

Sam has Stickler Syndrome; she explained, "It's a genetic tissue disorder that can affect the genes in your body and cause joint problems."

This is something her parents were prepared for before she was born.

The Faulkers have been long-time patients of Shodair; Sam's mom Erin also has Stickler Syndrome.

We first heard her story during the Children's Miracle Network telethon in June; since then, Sam had surgery on both knees.

It's Sam's resilience and fighting spirit that lead Shodair to choose her to represent Montana's sole Children Miracle Network hospital for an entire year.

By meeting with political leaders and national media outlets, they're putting a face and personal story to the Children's Miracle Network, a cause that's raised more than $4-billion dollars in its 29 year history.